Key Partners

Oulun yliopisto (University of Oulu) advances research on perinatal and neonatal care, using data from Finnish and Nordic registers to study interventions that improve outcomes for very preterm infants and their families.

University of Leicester leads the development and validation of the PARCA-5/7 parent-reported tool, combining psychology, public health, and epidemiology to improve long-term developmental follow-up for preterm children.

Norwegian University of Science and Technology (NTNU) contributes expertise in pediatrics, physiotherapy, and epidemiology, leading studies on early follow-up and intervention programs to support healthy development after very preterm birth.

Instituto de Saúde Pública da Universidade do Porto (Institute of Public Health of the University of Porto – ISPUP) provides expertise in public health, sociology, and health equity, ensuring that social and policy dimensions are embedded throughout IMPROVE PRETERM’s research on preterm outcomes.

University of Oxford contributes world-class expertise in health economics, helping to evaluate which care strategies for preterm children are most effective, equitable, and cost-efficient.

Global Foundation for the Care of Newborn Infants (GFCNI) leads stakeholder involvement, communication, and dissemination for IMPROVE PRETERM. The foundation coordinates the Parent & Patient Advisory Board, ensuring that family voices guide every stage of research.

INESC TEC (Institute for Systems Engineering and Computers, Technology and Science) develops open-source tools and software solutions for secure, privacy-preserving data analysis, supporting the technological backbone of the expanded RECAP Preterm platform.

Epigeny designs privacy-first digital infrastructure that enables international collaboration on sensitive health data while ensuring compliance with European data protection standards.

Karolinska Institutet (Karolinska Institute) contributes clinical and research expertise in pediatrics, neurology, and psychology, supported by high-quality data from the Swedish Neonatal Register and EXPRESS cohort.

Københavns Universitet (University of Copenhagen, UCPH) brings expertise in perinatal and lifecourse epidemiology and provides access to Danish health registers for long-term research on preterm outcomes.

Universitair Ziekenhuis Antwerpen (University Hospital Antwerp, UZA) advances family-centered care and neonatal follow-up practices, contributing data from the Belgian Neonatal Network and clinical research on improving care after preterm birth.

IRCCS “Eugenio Medea” – La Nostra Famiglia combines clinical, ethical, and psychosocial expertise to improve follow-up, rehabilitation, and quality of life for children and families affected by very preterm birth.

Tartu Ülikool (University of Tartu) contributes expertise in neonatology, child psychology, and long-term follow-up studies, expanding IMPROVE PRETERM’s reach across European cohorts.

Varsinais-Suomen Hyvinvointialue (Wellbeing Services County of Southwest Finland, VARHA) provides neonatal follow-up and clinical expertise, adding valuable data from the Finnish neonatal register and the PIPARI cohort to the project’s European research platform.

University of Warwick investigates how early life experiences after very preterm birth shape adult health and development, contributing critical long-term outcome data.

Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu (Poznan University of Medical Sciences, PUMS) strengthens IMPROVE PRETERM with expertise in neonatology, infectious diseases, and clinical trials, drawing on national and European neonatal data.

INSERM Transfert manages ethics, administration, and project coordination, ensuring smooth collaboration and compliance with Horizon Europe research standards.