Parent & Patient
Advisory Board (PPAB)

The Parent & Patient Advisory Board (PPAB) is at the heart of the IMPROVE PRETERM project. It brings together parents of preterm children and adults who were born preterm themselves to make sure that lived experiences directly shape our research.

By involving those most affected by very preterm birth, the PPAB ensures that our studies, tools, and recommendations truly reflect the needs and priorities of families. Members contribute their perspectives on everything from communication materials and outreach strategies to the design of research tools and policy recommendations.

Throughout the four-year project, PPAB members collaborate closely with researchers, healthcare professionals, and policymakers. Their insights help build a stronger, more family-centered foundation for improving care and long-term outcomes after very preterm birth.